Posted by Lilly from ? (188.8.131.52) on Monday, September 23, 2002 at 7:30PM :
I went to speak w/ a woman at the Junior League Family Resource Center here at Vanderbilt today about finding financial assistance for Lina. I can *NOT* emphasize *enough* how many times she asked me why a person with political connections/a politician from our community has not had Lina's condition taken care of yet, through connections, etc. I am so *disgusted* with the leaders of the Assyrian community! At least, one of our leaders should have done something about this by now. We should NOT be struggling with this situation anymore. It should have been taken care of. Lina's operation should have ALREADY HAPPENED by now!!!!!
Childhood Leukemia: A Guide for Families, Friends & Caregivers (Patient-Centered Guides) by Nancy Keene, Linda Lamb (Editor), I got this info (pg. 244-47). To order it from Amazon go to this site:
Blum, Laurie. Free Money for Heart Disease and Cancer Care. New York: Simon & Schuster, 1992. Book containing a state-by-state listing of associations, foundations, businesses, and agencies which give grants to eligible people or employees.
Leeland, Jeff. One Small Sparrow: The Remarkable Real-Life Drama of One Community's Compassionate Response to a Little Boy's Life. Sisters, OR: Multnomah Books, 1995. Written by the father of a baby with leukemia, this heart-warming true story describes how a community raised the entire cost of a successful bone marrow transplant. Contains numerous ideas for methods to raise funds. Christian perspective.
National Information Center for Children and Youth with Disabilities. Meeting the Medical Bills. To order call 1-800-695-0285. Written by the mother of a chronically ill child, this booklet reviews options for meeting medical bills. Includes tips, bibliography, associations, state insurance commisions, and state Medicaid associations.
Peterson, Sheila, and Jane Dove. A Special Way to Care. Friends of Karen, Box 217, Croton Falls, NY 10519. A free 187-page guide for neighbors, friends, and community members in their efforts to provide financial and emotional support for terminally and catastrophically ill children. Highly recommended for those who are starting a fund.
Lansky, Shirley B. "High Cost of Cancer." American Journal of Pediatric Hematology/Oncology 9 (1) (Spring 1987): 89-91.
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